My double minority life as a gay man with Autism Spectrum Disorder (Asperger’s Syndrome) has more than it’s fair share of excruciating challenges. I do not demand people to feel sorry for me when I share even the most painful experiences. Not everyone is going to understand how it feels to live with my condition. Nor do I expect praise from people who are willing to read about my life. It can be easy for me to come off as such a person. However, I know I am far from the type of person who demands metals and trophies just for writing about my life. Demanding praise and adoration is only going to result in the exact opposite.
I know there is a lot of diversity in the Autism community. People like Dr. Temple Grandin refer to Autism as a continuum, that ranges from nonverbal to traits that are more characteristic of Asperger’s Syndrome. I have never been a fan of functioning labels. I have many reasons for that. This quote below is the one which stood out to me the most. It comes from the Autism wiki and is regarding the high functioning label.
It minimizes the need for support and may make it harder to ask for help.
I cannot tell you how many times I have heard people claim that I am lying about my diagnosis only because I don’t exhibit the characteristics associated with low functioning Autism. I am not running around, screaming, throwing feces and lashing out. I have the ability to communicate verbally. I know that our society doesn’t consider that to be an acceptable way to communicate my frustrations. I cannot think of anything else that leads to such ignorance than the high functioning label. It leads to the assumption that Autism is a contest. The child with the most “severe” traits receives an “A” a grade on their Autism report card. The graders are people who simply base their perception of what constitutes as “legitimate Autism” on the one person whom they happen to know.
I now know that Autism is a much more complex neurological disorder than our society likes to think it is. Another major problem many have with the high functioning label is that it can cause the individual to believe they are more superior others who have ASD. As indicated on the Autism wiki page, this mindset can cause the child to grow up to behave disrespectfully towards those whose struggles are different or more significant from their own. I am not proud to admit that I was guilty of such a thing back in my teenage years. I internalized the bullying and social stigma my peers subjected me to.
I used my experiences with bullying as an excuse to completely shut out those who also understand how it feels to be different. I like to think those who accuse me of lying about my diagnosis will change their minds after reading my admission of such a statement. However, I can only change the minds of those who are willing to listen to me. They say the steps towards becoming an active listener are pay attention, show that you are listening, provide feedback and respond appropriately. Such a statement should apply to one’s own words and thoughts just as much (if not more) than it does for those of others. I still have trouble doing those things when I experience depression and anxiety over situations which most people wouldn’t experience such feelings.
I know my high functioning label never will be absolute. It changes from day to day and situation to situation. I cannot seem to come up with any other way to explain that, other than to say that it depends on the person I am dealing with and the environment that I am in on that particular day and during that particular situation. That is one of the things neurotypical I wish neurotypical people understood. Despite such ignorance, I know that to be true. I know that I will only need to prove that fact to myself.